life can be like a blog in a number of ways. Both can be unpredictable. Both have highs and lows that would make the Stock Market proud. Though we try to use this site to exchange information. Today will not be as fun and funny as we would like.
Tomorrow, I will devote my blog to focus on Parkinsons disease!
Parkinsons. I think this may be the first time I heard myself say it. I’ve been wrestling with it for about 4 years.It started when my wife noticed me shaking while trying to open a jar of jelly. I noticed myself shaking while brushing my teeth. Fast forward to now! At first, I thought about keeping a diary of my days and nights, but that seemed a bit morbid. So I decided to just chronicle events and how I reacted to them.
What I’ve learned about PK so far is that every day is a brand new reality. I have a very structured routine, but some days, it is almost worth it. A trip to the restroom is sometimes enough to change how I feel. It’s rather odd. Imagine going to the bathroom spry and limber, and coming back worn out and tired. Imagine feeling like a 20 year one minute and a 50 year old seconds later. It is more frustrating than painful. Imagine having a meal, and the meal makes it difficult to move around. I’ve been to document what foods I eat and when, in an effort to find out what foods cause a reaction.
anyway, I had Cheerios and a slice of pizza for breakfast
popcorn for lunch
1/2 of a mediterranean wrap for dinner
I felt bad this morning, better by noon. A little tired by 5, and okay since then.
What have I learned about myself?
I’ve stopped eating chicken for the past 3 weeks, and I think it helps me. I think chicken is a trigger for me, so I stopped eating it. So far So good
I keep forgetting that medicine taken before a meal is just as potentially problematic as taking it after a meal. I have to remember 2 hours before and after. If I mess up, it’s like missing a bus. Yeah, there is another one (more medicine) coming, but you will have to wait for it.
A change in television habits has helped my insomnia. I am sleeping about 5 hours, but not waking up nearly as much
Be Patient With Yourself! My wife said to me that it is time to embrace who you are. It is time for us to embrace the new Steve. I need to figure out just who that is.
anyone know of any Parkinson’s Websites???